Q&A: RAISING A MEDICALLY COMPLEX CHILD | SEASON FINALE | 9 MONTHS OF GRACE
Q&A: RAISING A MEDICALLY COMPLEX CHILD | SEASON FINALE | 9 MONTHS OF GRACE
We are beyond thrilled to share that our sweet Bon Bon is officially 9 months old! While the prognosis for Edwards syndrome is undeniably heartbreaking, we are constantly reminded of the grace and love we receive from a living God.
This journey has given us the precious opportunity to embrace our little Lebone : to learn her quirks,…
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I love you guys, a lot! Our Lebo is a pure miracle. She will heal well
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i just wanted to say you guys are truly beautiful people thats all!
I love you❤
Wow, great news on Lebone, we love 😍 you family ❤❤🎉🎉🎉and praying for God's will to prevail in her life ❤❤❤🎉
She's beautiful I knew the dr saying she wasn't going to live long was a lie she's a living testimony and still have many more blessed years on this earth
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Thanks dear for everything, God bless your family. Ayikho into edlula umdali(God).
No man! Lebone is a Testimony, cant we have that name on her id in future? She's literally a living testimony… Yho God is extremely good. The last time you spoke about her I was in tears, my heart was shattered but im watching this with tears again but with tears of joy, tears of perfect disbelief of how God came through. "Thula wazi ndingu Thixo" we should exactly do that and fasten our seatbelt because God is the driver of this vehicle and we're going far❤
Big up to you family, may God who is great shower you with blessings beyond measure as you are not leaning in your own understanding but fully on Him.nje kwa pregnancy its complicated bt by God's grace things go according to His plans.You are giving hope to other couples out there😇🙏🙏hei and your faith is out of this world👏👏👏👏
Lebone is such a beautiful blessing and praise God for allowing you to educate us all. Thank you guys🙏🏾❤️
Be blessed families ❤more love from Namibia 🇳🇦 ❤️
I like the confidence you have that Bone will live and be among the 10 percent that make it Phetola. My heart sang Halelujah!
At 32, had a beautiful baby girl who was diagnosed with mitochondrial myopathy. We journeyed in and out of ICU for 11 months until she went back to be with the Lord!! It is the hardest thing we have ever gone through and God indeed brought us through. That was 2018/19. In 2021, fell pregnant and was soo afraid of the possibilities. Our baby was born healthy and strong, no anomalies. At 38 had another child, also very healthy. The death of our child ushered us into deeper relationship with God where we appreciate that it is by his mercy and grace and not anything we do.
It is a privilege to parent any child. God strengthen you daily on this journey and may he fill every day with his joy.
Thank you for sharing your family’s experience with Bonny with us. Maaaan Molimo ha o hloloe
Lebone le khanya ea molimo ho rona bohle eseng ho lona feela baha makhetha,molimo ore file eena ka morero,khotsong boo Lerato le Phetola,you r still young but the way you talk to us about god is soo adorable,lumelisang bohle ka lapeng kamoo,bananas bao le bo nkhono lebo ntate moholo kaofela,kele rata haholo feela
As a medical student, I am impressed by your medical knowledge Phetola❤🫶🏽thank you for this episode☺️
Love you guys❤ my daughter was also born 9 months ago. Also her name is Khanyokuhle 😊 we prayed for a boy but God gave us light. Such a blessing am raising five beautiful girls now. You guys have been a blessing of gratitude and love ❤️.
God allows it! Everything is working out for good.
May God continue to grant you grace and perfect all that concerns Lebone. Trust in His plan continually, for He has a purpose for you. You are a blessing to the world, and may you continue to shine for Christ. Just as Jesus faced uncomfortable questions, He remained faithful to His purpose and fulfilled the mission God had sent Him for.
With gratitude,
Nthat’s
Massive respect to you🙏🙏🙏❤️❤️❤️ you are very courageous
The peace you guys have is so evident, Pheto looks more beautiful 😍…the longer you guys live the brighter you shine… Lebone is perfect, she's born of God ❤❤
God is good ❤️
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26:43 She's a boss baby! One thing about the Makhs they will crack a joke 😂
Thank you I have been enlightened ♥️
Why aren't you asleep at this time? You guys are alot yazi. Anyway outside of SA, they test all chromosomes which is great however, should there be an issue found, there is still no cure…so definitely nothing really can be done except you preparing yourself
Because you are speaking😂
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💝💝💝💝 God is Good🙏
May God continue to glorify himself in Lebone's life. May He complete what He has started. May He do only what He can do. He created her and He is restoring her in Jesus name.
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One thing about God. He is showing us who is GOD, through Lebone.. He is showing off through Lebone.. he is truly faithful to his people..
I am so grateful to God that you’re in this together. Would you say that Lebone has contributed to your solid relationship? Phetola, you look amazing, Mama. Stay blessed, family!
Regarding schools, Linden is a good area to consider because it caters for all the schools you need
I follow you on both but I never see your posts on insta. Following too many people 😅. So… thanks
Lehakoe Leruo Lebone beautiful names with powerful meanings ❤ ke Ramasedi ba ha Makhene o na le lona, ka mehla 🙏
You do it all with so much grace. God bless you on this journey fam and may He continue to show you His favour and love. As for baby Lebone, a light to so many of us and very loved. Most importantly by God❤
Pethola I am not sure if this is a right platform… but you normally cough atleast on all episodes… but your doctor can confirm if there is nothing to worry about. I AM NOT WORRIED, just
I knew your God will come through. Lebo can smile roll on the floor and I thank God for care givers she has… not mentioning siblings. You are the best team and parents
Hey Fam❤ we thank you for letting us inside your life…
Lebone is Amazing I am so inspired
5:29 "We should expect good things from God and it should be normal" 📍🥹
Oh i am soo blessed… God 🙌
Thanks for the update… and all thanks to God👏🏼👏🏼🙌🏻❤
Thank you for sharing 🙏
I love Lebone ❤️ 😍. Everything the professionals says are impossible, she said I will prove you wrong because I have a great father called God and nothing is impossible for him. I can only imagine her laughing everytime they said it was impossible. If that is not the sign of God's grace and will then I don't know what it is. God is indeed so good. ❤❤. It reminds me of a song lyrics when the doctors says no, God says not yet.
Faith is to hope for things which are not seen. God is forever faithful to His children🙏 Merry Christmas to you and your family guys🌲❤
You deserve a break but I'm going to miss you guys over the festive season
Phetola, you are doing so well. You are a suitable candidate for MBCHB. It s never too late gal.